I want off the drugs.
12/19/2010
I see my neurologist tomorrow morning, and it's been entirely too long that I have had an appointment with him. I have had plenty of back and forth emails, but no in-office visits for a long time. I plan to discuss --
- Changing my seizure medication. I want OFF of this combination. I am sick of feeling like a sponge, a half-asleep, dizzy, confused, ataxic, can't write, can't think, can't SEE, sponge.
- Avoiding adding a weight-gaining medication, because I know the "old school" seizure drugs that tend to work, tend to pack on pounds, and I am doing WELL with this combination of maintaining weight. Topamax WORKS, even if it makes me feels HORRENDOUS. I cannot tell how much or which drug causes which side effect, because "Hey, I can't feel my feet right now!"
- I know I need to remain on medication, because I am still seizing. I want to try a different option is all, let's try different side effects!
- I need something to control the complex partial seizures, it's totally unacceptable to me that I am still having them as frequently as I do, without a cause or indication.
I am bringing along my registry of 145 post WLS seizure patients, and although I am entirely aware that he has ZERO thoughts that my condition is at all related, of course I do. I live in this body, I have this brain, this brain worked before I lost 170 pounds and got pregnant.
I will show him, to at least make the point that I'm trying to gather information, and we are all seeking answers. Maybe he has access to further research or resources for ALL of us, even if it doesn't end up pertaining to me specifically. Maybe.