Overachiever.
05/05/2012
I did it. I seized on demand. GO ME. No, really, this is huge. I have NEVER gotten a seizure on EEG. But this morning, around 5am, unbeknownst to ME -- I had a grand mal seizure. This has not happened in a very long time (that I am aware of, you remember that I do not recall seizures unless I mess things up and find evidence...) and is likely the result of going cold turkey on my anti-seizure meds.
I am thrilled. Well, not in a happy way, but you have to understand this is huge for me because I have been living With Epilepsy for five years with zero answers. My neurologist will be pleased when he views the EEG and video feed. The neurologist on staff here in the unit said that it was very clear where the seizure activity began, right side near to my polymicrogyria (brain malformation)and I show other activity between seizures in the same area. I can't wait to see it. It's been so very long without any answers.
Now what? I sit here going crazy, hoping that I don't have to stay the full ten days while they continue to monitor my brain activity. I am on camera and audio 24 hours a day, with zero privacy.
STAB.
Worse than that is the fact that I am a very daily shower-er. Not showering makes me apeshit. I have various body cleansing methods, but one cannot help but feel gross.
I can't wait to get out of here. I know I am in for a good reason, and so pleased IT WORKED.